When I first met Graciela Tiscareno-Sato, I was literally living in the wild. In 1991, Grace and I were both students in the U.S. Air Force Survival School, and we spent a week in the forest on the Canadian border, eating ants and worms and trying to make fire with sticks. I was terrible at this stuff, but Lt. Tiscareno – as she was known then – became a “go-to” person for everyone in the unit. She wasn’t much better at starting fires than the rest of us, but her can-do spirit made her feel like someone you could lean on.
So imagine my surprise when I saw her name in the “letters to the editor” file at Teaching Tolerance 18 years later. Grace didn’t know I worked here: she just had a story to tell, and was confident we would be interested. In the Air Force, when you take that kind of adventurous stab at something, people say you’re doing things “in the blind.”
Grace wanted to tell us about her “wild” child. Milagro was born 15 weeks premature, and while she’s thriving now, she never developed the ability to see. People told Grace that her daughter’s visual impairment would limit her physical activity. But early on, Grace and her husband could clearly see that their daughter was “wild” in the old-fashioned, boisterous-child sense of the word.
So Grace and her husband let their “wild” child run that way. They installed a pair of trapezes in the living room. They introduced Milagro to skateboarding and gym classes. Today Milagro is a gymnast, a downhill skier and just generally a kid who likes, in Grace’s words, “to fling herself into space.”
Grace produced a documentary to offer other parents some hints on how to raise “wild” children with disabilities. In this film, there’s not a lot of preaching about theories of child development. Instead, the documentary is an up-close story of Milagro’s unfolding interest in any activity that is daring and challenging, and the story of how Grace and her husband made a space for that interest.
Every major point is underscored with video of Milagro in action at various stages of life – swinging, skiing, tumbling and taking bold first steps into a number of other activities.
There’s a lot of raw material here to discuss with your colleagues. Are we overprotective of our children? If you’re teaching children with disabilities, what things are parents doing at home that you can emulate? How do you scaffold kids to behaviors that go beyond what most people expect of them?
I’d love to hear what you think about living “wild,” and living “in the blind.”



Comments
The “Wild” Side of Kids with
The “Wild” Side of Kids with Disabilities
To me the gist of this article is that kids need not develop any knowledge/belief of their own limitations if the purported limitations are never pointed out to them as being a limitation. Milagro's inability to see would be viewed by most people as something to pity, and most would say that such a child ought be extremely sheltered careful and steer far clear of activities such as gymnastics, skiing, etc. There is even a difference in the term 'blindness' vs. 'inability to see.' Blindness as a term carries a negative stigma in my opinion, inabilty less negatively charged. Milagro never internalized the idea that she could not or should not pursue activities presumed as sight-dependent. Therefore, nothing kept Milagro from becoming accomplished at these activities. Milagro likes “to fling herself into space” because no one ever told her to be afraid to do so. I really enjoyed this story. It underscores how limitations need not be a fact - maybe we are consructing our own limitations or internalizing them as they are being fed to us from outside. Be less narrow minded, and perhaps ability and joy will follow!
-Guenevere
Guenevere, You are spot on
Guenevere,
You are spot on with your observation of how Milagro has never learned that she has limitations. I'm her mother and I refuse to put such thoughts in her head. She's the master of so many things at such a young age that already she has established great self esteem and confidence to try new things. She's a Braille reader who creates her own poems (and writes them on her Braille writer). She's got an excellent brain for Braille math and playing the trombone.
My concern now is the rest of the world and how people will attempt to limit her and what she can accomplish. I'm hoping more of her peers, teachers, future colleagues, college students and employers will learn about her and begin to change their perceptions of people who are blind. “If you see a person who is blind, presume competence.”
If you want to see a TV news story about her and our public awareness campaign, please see the KGO-TV San Francisco story here: http://bit.ly/4gwTXB
If you know Spanish-speaking families who could benefit from Milagro's example of fierce independence (I'm a Latina and know first hand the urge of my community to overprotect kids with disabilities), please share this newspaper story with them: http://bit.ly/1ocuQN
If you want to show the DVD at a parent workshop, a diversity day, please visit www.babymilagro.org.
Thanks Tim for portraying my daughter is such a very positive light!
Graciela Tiscareno-Sato
grace@babymilagro.org
510-967-3339