Meet Kennedy, of Mombasa, Kenya. His wheelchair doesn’t stop him from making the world a more beautiful place.

“Is there anything you wanted to know about me?”

“Every brain is a little bit different...”

In this book excerpt Mattie Stepanek describes what it is like living with a rare neuromuscular disease. Defying many developmental odds, Mattie recounts highs and lows as he travels toward his tenth birthday, living on what he terms “the edge.”