Toby and Clemmie love each other very much. Sometimes Clemmie has to go to the hospital though, and it can be scary. Luckily, Toby and Clemmie know how to make the best out of every situation—even ones that involve a trip to the hospital.
In this book excerpt Mattie Stepanek describes what it is like living with a rare neuromuscular disease. Defying many developmental odds, Mattie recounts highs and lows as he travels toward his tenth birthday, living on what he terms “the edge.”